In the News

TV, Newspapers & Podcasts

Our mission to cure Jordan's Syndrome is making international news.

Watch, read and listen below!

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CBS Sacramento: Local Girl May Hold Key to Unlocking Certain Disorders and Diseases

May 1, 2017

Jordan Lang is an 11-year-old Sacramento girl who might hold the genetic key to helping doctors unlock the secrets of certain intellectual disabilities, autism, Alzheimer’s and cancer.

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Sac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer’s, Cancer

August 22, 2018

The Sacramento Bee interviews our newest research partners about the hope and potential for a cure to Jordan's Syndrome.

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CALmatters: California Lobbyist Fights For His Daughter, With Legislature’s Help

August 12, 2018

Dan Morain, a columnist with CALmatters who has previously written about Jordan's Syndrome, chronicled our milestone $12 million funding from the State of California. He also provides an update on our research and its potential impacts.

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FOX Denver: Denver-Area Girl One of Just 64 in World With Rare Genetic Mutation

July 14, 2018

KDVR in Denver, CO, featured the Jordan's Guardian Angels researchers workshop and told the story of Yara, who has been diagnosed with Jordan's Syndrome.

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Sacramento Bee: This lobbyist is fighting for the biggest cause of his career: his daughter

August 5, 2017

The Sacramento Bee traveled to Washington, D.C., for the first Jordan's Syndrome family conference, where families from around the world gathered with researchers to officially begin the research.

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IVN: Does Your Child Have Jordan's Syndrome?

July 10, 2018

IVN, an indepedent news platform, featured an in-depth story about the history of Jordan's Guardian Angels and the potential worldwide impact of our research into Jordan's Syndrome.

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CBS Houston: Houston Family Fights for a Cure

April 5, 2018

KHOU in Houston, TX, featured the story of the Huber family and their son Hutton, who has been diagnosed with Jordan's Syndrome.

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CBS Sacramento: Families Share Their Journeys on Rare Disease Day

February 28, 2018

In celebration of Rare Disease Day, families from around the world with children diagnosed with a rare genetic mutation potentially linked to autism and Alzheimer's disease, more commonly known as Jordan's Syndrome, connected on Facebook Live to spread their message and stories. 

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FOX5 DC: Families with Jordan's Syndrome Meet For Study to Learn More About Rare Gene Mutation

August 10, 2017

Families from around the world who have children with a rare gene mutation came to Washington D.C. to participate in a study that could lead to a medical breakthrough.

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Israeli TV: Inspiring Story of the Avni's, Who Are Caring for Their Daughter Who Suffers From a Rare Syndrome

September 28, 2017

Michal (two-and-a-half years old) was born with a very rare syndrome – a mutation in the gene PPP2R5D. This mutation severely affects all of her development.

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BBC: Girl, 10, one of 35 in world with PPP2R5D condition

August 22, 2017

Hermione Heseltine is one of only 35 people in the world to have a PPP2R5D genetic disease, which was only discovered two years ago.

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Sacramento Bee: Their son has a rare genetic disorder. But here’s why they don’t give up hope

August 12, 2017

Liam couldn’t nurse, wouldn’t look people in their eyes and didn’t hit milestones. At their doctor’s suggestion, they had his genome mapped in 2015. The result showed a mutation on one gene, known as PPP2R5D.

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Univision Phoenix: Padres de Mesa sufren por una extraña condición de su hija

August 10, 2017

La pequeña sufre una extraña mutación genética que le provoca diversas alteraciones a su salud y no le permite llevar una vida normal.

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Northampton Chronicle: Researchers in America one step closer to cracking rare genetic condition with help of Northampton girl

August 9, 2017

Hermione Heseltine, from Abington, was flown out to Washington DC with her family on August 1 to help researchers shed light on a disorder with only 35 known cases in the world.

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Donegal Democrat: Donegal boy in far-reaching US study

August 2, 2017

A Donegal boy has been found to have a very rare gene mutation that researchers hope will provide a key to treatment of cancer, dementia and neurodevelopmental disorders, including autism and intellectual disabilities.

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NBC Phoenix: Valley Girl with Rare Disease Set For Groundbreaking Study

August 2, 2017

Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.

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FOX5 DC: Discovery of Rare Gene Mutation May Help Solve Neurodevelopmental Disorders

July 31, 2017

Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.

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Lessons In Joyful Living Podcast: Jordan's Guardian Angels

July 21, 2017

Join Kimberly Rinaldi on Lessons in Joyful Living, today she speaks with Jordan's Guardian Angels founder Joe Lang. Jordan is Joe's daughter and the inspiration for current work the foundation is doing that will impact millions.

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CBS Sacramento: Study Could Unlock Key to Cure Autism, Alzheimer's and Cancer

May 1, 2017

Dr. Wendy Chung, lead medical investigator for the PPP2R5D study, explains the potential global impacts of the research.

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Taranaki Daily News: Scholarship awarded to mum of boy with rare disease

October 5, 2016

Everyone might have a dream, but one of Emma Crofskey's is coming true.