Our Families

FIGHTING FOR A CURE

There is no love like the love a parent has for their child.

From New Zealand, to Israel, Colombia and everywhere in between, parents of children impacted by Jordan's Syndrome worldwide are guided by that fierce, limitless love. Our families are from across the globe. If not for the PPP2R5D variation, we all almost certainly would have remained strangers.

Instead, we are united by this common cause, coming together to do whatever necessary to push this research forward. Bolstered and strengthened by the bond we collectively share, we are committed to doing whatever it takes to bring a brighter future for our children – and so, so many more.

IN THEIR OWN WORDS

The families impacted by Jordan's Syndrome
share their stories, and their collective hope for a cure.

JORDAN'S SYNDROME: BY THE NUMBERS

Nearly
70

Cases

In
19

Countries

Likely Approx.
250,000

Undiagnosed Cases