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"Superheroes on the Move" Event Brings Families Together, Raises Thousands

Teaming up with a pair of superheroes, dozens of families were on the move to raise money for our groundbreaking research into Jordan's Syndrome. The Superheroes on the Move event held last Saturday in the Phoneix area raised more than $4,000!

More than 90 people took part in the walk, which was led by Captain America and Wonder Woman. Three families with children diagnosed with Jordan's Syndrome – Avianna, Ava, and Yara – joined in the festivities.The family-oriented event featured a bounce house, as well as a raffle with donations from the W Scottsdale, Waxing the City Tempe, Kendra Scott Scottsdale, Laser Away Chandler, and a gym membership from Desert Fitness Mesa.

We were also thrilled to be joined by several vendors, including Pawsitive Friendships, a Phoenix-area organization that provides animal-assisted therapy to children with special needs. Thank you to everyone who came together to make this event so special!!

Published

February 28, 2018

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Jordan's Guardian Angels to Host Global Facebook Live Event on Rare Disease Day

On February 28th, Rare Disease Day, families from around the world with children diagnosed with a rare genetic mutation potentially linked to autism and Alzheimer's disease, more commonly known as Jordan's Syndrome, will connect on Facebook Live to spread their message and stories.

WHO: Families from around the world with children diagnosed with Jordan's Syndrome, including Carole Bakhos, Nancy DeOrta, Joe Lang, Fernando James Plata, and Malinda Burke

WHAT: Rare Disease Day with PPP2R5D Families on Facebook Live

WHERE: Watch live on Facebook here: https://www.facebook.com/PPP2R5D/

WHEN: February 28, 2018 at 11 AM PST

Since 2015, over 50 families from around the world with children diagnosed with Jordan's Syndrome have connected on Facebook to share stories and support.

To watch the live video, visit https://www.facebook.com/PPP2R5D/.

Published

February 20, 2018

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1121 L St, Suite 100, Sacramento, CA 95814

Jordan’s Guardian Angels is a public charity exempt from Federal Income Tax as an organization described in Section 501 (c)(3) of the Internal Revenue Code, EIN 90-1022228. Contributions to Jordan’s Guardian Angels are tax deductible to the fullest extent allowed by law. No goods or services were provided in consideration for the contributions except as reported above.