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Swing for Charity Event Raises Hundreds of Thousands

Under brilliant blue skies, dozens hit the links in South Lake Tahoe for a good course: raising money to help Jordan’s Guardian Angels cure Jordan’s Syndrome, a recently-identified mutation on the gene PPP2R5D. And – it was an incredible success. Thanks to more than 80 sponsors and guests, the second annual Golden State Classic at Edgewood Tahoe raised more than $270,000!

We decided to add a little sizzle and fun to cocktail Party on Thursday night, so we created a $1 million hole-in-one contest. That’s right – 15 lucky sponsors were chosen out of the attendees to take a swing for $1 million dollars. One by one, they took their swings on the ninth hole, but wind coming in off the lake made for difficult conditions. We all had a great time watching them try their best!

Then, guests were treated to an update on our promising research progress, featuring a short video and an in-person discussion with Kyle Fink, Ph.D., from the UC Davis Institute of Regenerative Cures. Attendees learned first-hand about recent breakthroughs that show Jordan’s Syndrome is reversible.Watch the video below!

Then, it was time to swing for charity on a picture-perfect Friday morning. You may remember that golf was canceled last year due to unseasonal September snow, but this year, the fairways were pristine, it was 83 degrees, and we were back to making birdies instead of snow angels.

Matt Back and Terry Brennand tied for the GSC Angles Cup with 79’s. Matt Back won the Angles Cup Trophy in a playoff!

We want to thank our presenting sponsor, Norwood Associates, and our major sponsors, Altria, California Independent Voter Project, District Council 16 International Union of Painters & Allied Trades, and Walmart.

We also want to take a moment to appreciate our supporting sponsors: Aaron Read & Associates, American Beverage Association, Amgen, Boehringer-Ingelheim, BBC Public Affairs, Bob & Sara Giroux, Brandenberg Group, Buena Vista Construction, California Cable & Telecommunications Association, Capitol Alliance, Carter Wetch & Associates, California Beer & Beverage Distributors, CSEA, DaVita, Fanslau Government Affairs, Farmers Insurance Group, Fernandez Government Solutions, Five Star Bank, George & Wendy Miller, Larisa Cespedes, McHugh, Koepke & Associates, SEIU – Statewide, Sloat Higgins Jensen & Associates, Sycuan Band of the Kumeyaay Nation, Southern California Painters & Allied Trades – District Council 36, Uber, Villines Group, and Wayne Ordos, Attorney at Law.

Finally, we want to thank our legislative supporters: Assemblymember Ian Calderon (AD 57), Senator Anthony Cannella (SD 12), Assemblymember Heath Flora (AD 2), Assemblymember Adam Gray (AD 21), Senator Richard Pan (SD 6), and Assemblymember Phil Ting (AD 19).

It goes without saying, but we can’t continue our mission to cure Jordan’s Syndrome without each of your support. On behalf of Jordan’s Guardian Angels and our families around the world who will directly feel the impact of this inspiring generosity, thank you!!!

Published

August 29, 2018

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One Year Later: Progress After the 1st Family Conference

One Year Later

One year has passed since families from around the world came together for the first-ever Jordan's Guardian Angels family conference in Washington, D.C. In a matter of months, incredible progress has been made in our quest to cure Jordan's Syndrome, a recently-identified mutation on the gene PPP2R5D linked to autism, Alzheimer's, intellectual disabilities and cancer.

Here's a look back at the major milestones we've reached since that first family conference held in August 2017.

Closer to a Cure

Our Growing Community

The Jordan's Guardian Angels global family has nearly doubled in size, from 35 to now more than 60 families impacted by Jordan's Syndrome.

Researchers Come Together

Jordan's Syndrome is reversible. That was the major conclusion of our international research team in late 2017.

Our team of researchers, scientists and medical investigators held multiple in-person meetings, discussing early discoveries made during initial research. Our team came together in December 2017 in New York City, and again in July 2018 in Denver.

Worldwide Support

Thanks to the inspiring generosity of communities around the world, we have raised hundreds of thousands of dollars at multiple fundraising events in Houston, Texas; Lake Tahoe, California; Phoenix, Arizona; and Belfast, Northern Ireland, to name a few.

State of California Funding (July 2018)

A Funding Foundation

In a milestone moment, the State of California supported our research with a $12 million allocation in the state budget.

Our Work Isn't Done

The funding will help provide for the first phase of the project, though we must still secure additional resources to take additional steps toward curing Jordan's Syndrome.

First iPSCs Created (April 2018)

The first batch of iPSCs (induced pluripotent stem cells) have been created by the New York Stem Cell Foundation (NYSCF), and distributed to Rutgers University for duplication and distribution.

The iPSCs were created from blood samples given by our children at the first family conference in Washington, D.C., and will play a critical role in understanding Jordan’s Syndrome – and how it may be reversed, treated or cured.

Click here to learn more!

First PPP2R5D Mouse (Jan. 2018)

Our first mouse with a verified PPP2R5D mutation was created in early 2018. Researchers will study mice modeled with the PPP2R5D mutation to better understand how Jordan's Syndrome causes developmental delays, and begin to explore potential ways to treat, reverse or even cure the mutation.

International Attention

Media outlets from around the world have helped spread awareness about Jordan's Syndrome research – and its potential to help unlock some of the world's greatest medical mysteries. Television stations and newspapers in Sacramento, Houston, Denver, Israel, the United Kingdom and beyond have shared the stories of our families, and the amazing possibilities our research holds.

See media coverage here!

Connect With Us

Contact Info

1121 L St, Suite 100, Sacramento, CA 95814

Jordan’s Guardian Angels is a public charity exempt from Federal Income Tax as an organization described in Section 501 (c)(3) of the Internal Revenue Code, EIN 90-1022228. Contributions to Jordan’s Guardian Angels are tax deductible to the fullest extent allowed by law. No goods or services were provided in consideration for the contributions except as reported above.