Jordan's Guardian Angels is proud to announce the 2nd Annual "Shine Like Ozzie" Scholarship. Opening December 31st, 2022, this $1,000 scholarship is for a student (undergraduate or postgraduate) studying anything related to Epilepsy.

Last year, in its infancy, the Shine like Ozzie Scholarship had 15 applicants which is above and beyond anything Jordan’s Guardian Angels anticipated. We are so very grateful the rare disease community came together to spread the word and apply, and we are hoping to expand further this year.

Many members of our Jordan’s Syndrome community suffer from Epilepsy and debilitating seizures. That’s why research on Epilepsy is so important to us. It’s why we have joined the Rare Epilepsy Network, a partnership we are immensely proud of.


Most importantly, this scholarship is in loving memory of Ozzie Deason and all the other children our community has lost. Ozzie lost his life after a battle with Epilepsy and Jordan’s Syndrome.

“The Shine like Ozzie scholarship is extremely meaningful to our family for so many reasons. Epilepsy ravaged our daily lives and stole so much from Ozzie, and we understand how critical it is for families to find the appropriate Epilepsy care,” said Leah Deason, Ozzie’s Mom. “We are overjoyed to know this scholarship will go toward training Epilepsy focused doctors which the Epilepsy community desperately needs. We hope that Ozzie’s story will fuel the desire to help other children like him and be a guiding light in educating others on the importance of ending Epilepsy.”

We hope to continue this tradition for years to come with new applications open annually on Ozzie’s Birthday, December 31st. May his light and the light of all our children forever shine.

Applications close January 31st, 2023, and the awardee will be announced on Rare Disease Day, February 28th, 2023.


December 2, 2022