Our Community

FIGHTING FOR A CURE

There is no love like the love a parent has for their child.

From New Zealand, to Israel, Colombia and everywhere in between, parents of children impacted by Jordan's Syndrome worldwide are guided by that fierce, limitless love. Our families are from across the globe. If not for the PPP2R5D, PPP2R5C, or PPP2R1A variations, we all almost certainly would have remained strangers.

Instead, we are united by this common cause, coming together to do whatever necessary to push this research forward. Bolstered and strengthened by the bond we collectively share, we are committed to doing whatever it takes to bring a brighter future for our children – and so, so many more.

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JGA AMBASSADORS

JGA Ambassadors are specially trained, dedicated volunteers who connect with new families,
share resources, offer support in their native language, and help grow awareness of Jordan’s Syndrome.

Screenshot
USA Ambassador

JORDAN'S SYNDROME: BY THE NUMBERS

More Than
500

Cases

More Than
50

Countries

Likely Thousands

of Undiagnosed Cases

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