JGA Resource Center

Information about the foundation, our families, and more – all in one place

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New Families Welcome Letter

Learn how to get started with Jordan's Guardian Angels

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Medical Professionals Kit

Resources about our research & Jordan's Syndrome for medical professionals

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Living with Jordan's Syndrome

In-depth look at Jordan's Syndrome

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Let's Be Friends

JGA children's book helping classmates become familiar with Jordan's Syndrome

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Care Before the Cure

A guidebook developed by the JGA team about how to best support individuals with Jordan's Syndrome

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Simon's Searchlight Fact Sheet

Information about JGA's important partnership with Simon's Searchlight

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Journey to a Cure

High-level research diagram describing the progress made in finding a treatment or cure for Jordan's Syndrome

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Clinical Fact Sheet

Fact sheet about Jordan's Syndrome for Healthcare Providers

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JGA Roadmap

Roadmap for new JGA families

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JGA Research Team Updates

Updates from JGA researchers (March 2021)

Sibling

Project Halo

A safe space for siblings of individuals with Jordan’s Syndrome to connect, share, learn and support each other

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Sibling Resources

Resources for siblings of individuals with Jordan's Syndrome

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JGA Ambassadors

Information about the JGA Ambassadors program

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2022 JGA Research Update

The latest developments on the incredible progress our researchers are making

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Advocacy One Sheet

A rundown of how you can get invovled and join our advocacy efforts

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New Families Packet

A one-stop-shop of information and resources for new JGA families

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New Jordan's Syndrome Publication (Nov. 2022)

The latest medical study documenting Jordan's Syndrome