JGA Resource Center

Information about the foundation, our families, and more – all in one place

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New Families Welcome Letter

Learn how to get started with Jordan's Guardian Angels

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Medical Professionals Kit

Resources about our research & Jordan's Syndrome for medical professionals


Living with Jordan's Syndrome

In-depth look at Jordan's Syndrome

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Let's Be Friends

JGA children's book helping classmates become familiar with Jordan's Syndrome


Care Before the Cure

A guidebook developed by the JGA team about how to best support individuals with Jordan's Syndrome


Simon's Searchlight Fact Sheet

Information about JGA's important partnership with Simon's Searchlight

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Journey to a Cure

High-level research diagram describing the progress made in finding a treatment or cure for Jordan's Syndrome

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Clinical Fact Sheet

Fact sheet about Jordan's Syndrome for Healthcare Providers