Resources for Families

A comprehensive source of information for JGA families – all in one place

Jordan's--logo-PNG

New Families Packet

A one-stop-shop of information and resources for new JGA families

Screen Shot 2022-07-07 at 2.57.24 PM

JGA Roadmap

Roadmap for new JGA families

JGA-Care-Before-the-Cure_R02

Care Before the Cure

A guidebook developed by the JGA team about how to best support individuals with Jordan's Syndrome

LivingWithJS

Living with Jordan's Syndrome

In-depth look at Jordan's Syndrome

Screen Shot 2022-10-05 at 9.33.01 AM

Advocacy One Sheet

A rundown of how you can get invovled and join our advocacy efforts

ambassador

JGA Ambassadors

Information about the JGA Ambassadors program

Screen Shot 2022-05-15 at 11.57.52 PM

Let's Be Friends

JGA children's book helping classmates become familiar with Jordan's Syndrome

Screen Shot 2023-04-05 at 1.19.37 PM

Living with Hypotonia

How Jordan's Syndrome impacts children in school: Hypotonia

Screen Shot 2023-08-02 at 11.29.41 AM

Standardization of Care

A study on the appropriate standard of care for Jordan's Syndrome