Follow The Call of the Disco Ball – Houston Fundraiser a HUGE Success

Candice and Tim Huber have done it again, raising over $530,000 for Jordan’s Syndrome Research.

December 2, 2023 was an incredible night at the White Oak Music Hall in Houston. The event was complete with a silent and live auction, a design your own cowboy hat bar, food, drinks and it all finished under the disco ball where hundreds of people turned out to hear The Broken Spokes and country music star Clay Walker perform! It was a night to remember! 

From the Hubers and all of us at JGA we want to give huge THANK YOU to: 
-The Stier Family
-The Young Family
-Larry & Sally Fogg aka Mawmaw and Paw to Hutton & Leighton
-Bobby & Heather Anderson 
-Fabian Torres 
-Jeremy & Katie Morgan 
-Hamby Family
-Dave Wolf for arranging the beautiful Balenziaga & Gucci Purses in the auctions
-David Adkins & Jennifer Lucio w/ Martha Turner Sotheby’s 
-Kaustubh Daige & Larry Fogg w/ The Generator House
-Kevin Scroggins & the Santas Elves Foundation 
-Kim Hardy & Amy Webber for the beautiful flower arrangements
-Magness Orthodontics
-Matt & Josh Carr w/ California Marine Cleaning 
-Mona w/ Lashes Plus
-Juliette Breeze w/ Next Level Urgent Care
-Nadia Banegas w/ Pug Balloons        
-Shannon Strickler at Del Monte Reality 
-Trent Henry at TMS Roofing 
-Jesse Brown w/ Optimal Fundraising
-John Collado and the entire USI crew 
-Greg Janese at United Talent Agency 
-Katie & Mark White Oak Music Hall 
-Mari Dashawn & Kristina Rossenwasser w/ Da Rose Hat Bar (IG:@de.rose.shoppe.hatbar)
-Rylie Falwell for her amazing live painting (IG:@ryliecaldwellart)
-Vanicka Terhune for her amazing live painting (IG:@vanickaj)
-The Broken Spokes for another fantastic performance (brokenspokesmusic.com)
-AND thank you to all of our JGA Families who attended 

Scroll down to see all of the pictures from the event! 
Fundraising is a vital part of Jordan’s Guardian Angels, especially this year as we get set to begin human clinical trials. We hope that ALL of our JGA families will fundraise in some way this year. Big or small, every dollar counts! If you would like help with your fundraiser, email Candice Huber, Family Engagement Coordinator at chuber@jordansguardianangels.org
Thank you Team Huber for all that you do! We LOVE you!

Check out all of the event photos!


January 31, 2024



Inspiring Support: JGA Fundraising Event a Huge Success (PHOTOS)

We want to take a moment and celebrate the Huber Family for once again doing an incredible job of raising money for Jordan’s Syndrome research. More than $100K was raised at their Sip, Savor and Support JGA event in November.

And that’s not all: SO MANY OF YOU helped to make this event a success by selling tickets raising $30K!


Scroll down to see pictures from this fabulous event.

There are so many ways to fundraise for Jordan’s Guardian Angels and our research efforts into Jordan’s Syndrome and our mission. Stay tuned for more new and exciting opportunities.


January 19, 2023



Racing for a Treatment or a Cure for Jordan’s Syndrome: Our Most Successful Fundraiser to Date!

It was a star-studded October evening in Houston, where families from around the world came together in a record-setting fundraiser to support our groundbreaking research.

Candice and Tim Huber, whose son six-year-old son Hutton has Jordan's Syndrome, hosted their annual fundraiser benefitting Jordan’s Guardian Angels. As in years past, the generosity of those attending was nothing short of incredible. This year’s event raised over $440,000 for a treatment or a cure for Jordan’s Syndrome, our most successful fundraiser to date!This year, those in attendance wore their Kentucky Derby finest and were treated to an incredible motivational speaker, a live and silent auction, great food, dancing and more.We cannot say thank you enough to Candice and Tim Huber whose tireless efforts are simply unmatched. Your generosity, enthusiasm and love for our children and our cause know no bounds. THANK YOU from the bottom of our hearts!

We also would like to recognize our partners who went above and beyond to make the event a huge success for our children.

Table Sponsors:
Larry and Sally Fogg
Fire Safe
The Anderson Family
The Breeze Family
The Caldwell Family
The Fineberg Family
The Gill Family
The Hardy Family
The Hess Family
The Noreaga Family
The Purdy Family
The Torres Family
The Sims Family
The Young Family

Live Auction Donors:
GEAUX SAINTS GEAUX – Jeremy and Katie Morgan along with Southwest Airlines
SEA GLASS – Painted By Rylie Caldwell, www.ryliecaldwell.com; IG: @ryliecaldwellart
NEW BEGINNINGS – Painted By Amy Fogg Reedy, www.amyfoggart.com; FB: Amy Fogg Art; IG: @amyfoggart
WINGED SOUL – Painted By Leslie Tammariello, leslietammariello.com; FB: leslie.tammariello

It goes without saying, but from the bottom of our hearts, we at Jordan’s Guardian Angels are incredibly thankful for the generosity and support. You truly are life-changers!

Check out our full image gallery below!


December 1, 2021



1st Annual C3P-Go Gala Raises Hundreds of Thousands for Groundbreaking Research

The giving spirit was on full display on a night that surpassed even our most optimistic hopes and dreams. We are so incredibly excited and grateful to announce that thanks to our global community, the first annual C3P-Go Gala in Houston raised hundreds of thousands of dollars to help fund our research into finding a cure for Jordan’s Syndrome.

In all, $365,000 was raised, which will directly support the groundbreaking research that may bring answers for our children and potentially millions more. The event was organized by the Huber family, or Team Huber, as they are affectionately known. Their two-year-old son Hutton was diagnosed with Jordan’s Syndrome.

Attendees bid on everything from timeless sports memorabilia to sparkling jewelry in a silent auction. There were games and raffles aplenty. Inside the ballroom, we kicked off the evening’s festivities with a warm welcome from our lovely MC, KHOU meteorologist Chita Craft.

A live auction was held, where partygoers anted up for five-star getaways and more. One of our researchers, Dr. Ghayda Mirzaa, explained the potential behind the project, examining how Jordan’s Syndrome (a newly-discovered mutation in the gene PPP2R5D) is linked to autism, intellectual disability, Alzheimer’s and cancer.

In an inspiring moment for all, Jordan’s Guardian Angels co-founder Joe Lang was joined on stage by several of our families as he spoke to the audience about the need to help. What happened next was nothing short of stunning.

Our live auctioneer asked those in attendance to consider making a charitable donation – simply in the spirit of generosity. The response was as immediate as it was overwhelming, as dozens raised their paddles to contribute to our mission. By the time it was all said and done, we’d far exceeded our goal for the evening.

“As I sat by the stage admiring all the clapping hands and the loving eyes fixated on our children, it became very clear that there is nowhere else I would rather be,” said parent Carole Backhos. “If Jordan’s Syndrome wasn’t part of our lives, what could I possibly be doing at that exact moment that would have had any sense of achievement and belonging? [I am] thankful every day for the meaningful life this journey has put us on.”

Internationally-known performance painter Michael Israel thrilled the crowd, turning blank canvases into beautiful art in a matter of minutes – a spectacular way to cap a night that we won’t soon forget.

It was an evening filled with fun, laughter and hope. Click here to view a full gallery of the evening's festivities!

Jordan’s Guardian Angels would like to thank the following families and businesses whose invaluable contributions made for a truly unforgettable night. We can’t begin to express our gratitude – and we are already looking forward to next year!

The Fogg Family, Altivia, Wyatt Ranch Foundation, USI, Englobal, Holloman Corp, MOGAS Industries, CVA Tanks, Kendra Scott

Live Auction Donors:
The Brashiers, Andersons, Cleers and Foggs

Games, Raffle & Silent Auction Donors:
ARKANSAS: Bourbon & Boots

CALIFORNIA: Mike West & Paul Hermann

COLORADO: Crested Butte Mountain Resort, Mario’s Pizza & Pasta

FLORIDA: Amy Fogg Art

TEXAS: Athleta, Ciro’s Italian Grill, Chick-Fil-A, Consuelo Sierra, Doris Metro, Elaine Turner, Escape Room, Guadalajara Hacienda, Gunner Hook, Hallmark Memorial, Hotel Zaza, Houston Zoo, Kendra Scott, Lacy Cunningham (Rodan & Fields), Lash Plus, Ledge Loungers, Marilyn Biles Collection, Mr. Poppa Gourmet Popcorn TexasNice Winery, Paisley House, Paris Texas Apparel, Steadman West, The Southern Door, Total Wine, UrbanCHEF, Well Done Cooking Class

LOUISIANA: Andy’s Jewelry, Dave Hardy, Garrett Gauthier, Katie LeBlanc, Ken’s Coffee, Lauren McElligott, Maven, Nichols, Obagi (Alexis Joubert / Elizabeth McElligott), Perry Ste. Marie, Robert & Penny Leblanc, LeBLANC+SMITH, Snap On Tools, Swags & Tassels

KENTUCKY: Kentucky for Kentucky Socks, Mouth’s Candys

MAINE: Loohoo Wool Dyer Balls

OREGON: Bend Armoire Jewelry, Bend Nut Roasters, North Broken Top Candles, Cascade Lavender, Conscious Ink Manifestation Tattoos, Dani Naturals, Deb’s DeWine Design, Desperado, DIY Cave, Farmhouse Soy Candles, Hopped Up Jewelry, Hopscotch Kids, Justy’s Jellys, LeLeO Leather Ties, LoilJ Essential Oils, Meadowland Syrups, One Love by Panambi, Oregon Bath & Body, Paper Jazz, Pendleton, Savory Spice Shop, Silipint, Silverado, Skin First by Terese, Spiritopia, Spoke Bracelets, Steena’s Suds, Sweet Mama’s Soap Co., Van Heusen, Vintner’s Kitchen, Wild Roots Vodka


April 17, 2018



Image Gallery: 2018 C3P-Go Gala


"Spooktacular" Benefit Dinner Raises Thousands for Research

Jordan’s Guardian Angels is extremely grateful to have been the recipient of the 3rd annual St. Catherine’s of Siena Catholic Church Benefit Dinner this past Saturday in Houston.

The Trunk or Treat was a spooktacular time and the turnout was amazing, raising over $7,000!

All proceeds will be directly utilized in our research to find a cure for Jordan's Syndrome. While this is just the beginning, together with your help, we are now closer to achieving our goals and helping children around the world live fulfilling and happy lives.

From the bottom of our hearts, we want to thank @StCatherineHouston for their generosity and support of these families and JGA. A special thank you to our silent auction donors (Finesse Salon & Spa-Memorial, @ElaineTurner, @KendraScott, @karbachbrewing, @OptimalGroup, @TotalWine), Fish Frying Crew, volunteers, family and friends who came out and helped make this wonderful event a huge success!

You have all certainly earned your wings as 3P Angels!

#wearthecrown #totalwine #KendraScott #karbach



November 7, 2017


Connect With Us

Contact Info

1121 L St, Suite 100, Sacramento, CA 95814

Jordan’s Guardian Angels is a public charity exempt from Federal Income Tax as an organization described in Section 501 (c)(3) of the Internal Revenue Code, EIN 90-1022228. Contributions to Jordan’s Guardian Angels are tax deductible to the fullest extent allowed by law. No goods or services were provided in consideration for the contributions except as reported above.