{"id":12311,"date":"2017-10-05T05:09:20","date_gmt":"2017-10-05T05:09:20","guid":{"rendered":"http:\/\/jga.jcomminc.com\/?page_id=12311"},"modified":"2022-09-14T15:59:04","modified_gmt":"2022-09-14T15:59:04","slug":"in-the-news","status":"publish","type":"page","link":"https:\/\/jordansguardianangels.org\/in-the-news\/","title":{"rendered":"In The News"},"content":{"rendered":"<p><section class=\"ffb-id-hpse41r fg-section fg-el-has-bg fg-text-dark\"><span class=\"fg-bg\"><span data-fg-bg=\"{&quot;type&quot;:&quot;color&quot;,&quot;opacity&quot;:1,&quot;color&quot;:&quot;rgba(52, 52, 60, 0.84)&quot;}\" class=\"fg-bg-layer fg-bg-type-color \" style=\"opacity: 1; background-color: rgba(52, 52, 60, 0.84);\"><\/span><span data-fg-bg=\"{&quot;type&quot;:&quot;image&quot;,&quot;opacity&quot;:&quot;.3&quot;,&quot;url&quot;:&quot;https:\\\/\\\/jordansguardianangels.org\\\/wp-content\\\/uploads\\\/2017\\\/10\\\/people-2566677_1280-2.jpg&quot;,&quot;size&quot;:&quot;cover&quot;,&quot;repeat&quot;:&quot;no-repeat&quot;,&quot;attachment&quot;:&quot;scroll&quot;,&quot;position&quot;:&quot;center center&quot;}\" class=\"fg-bg-layer fg-bg-type-image \" style=\"opacity: .3; background-image: url(&quot;https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/people-2566677_1280-2.jpg&quot;); background-repeat: no-repeat; background-attachment: scroll; background-position: center center; background-size: cover;\"><\/span><\/span><div class=\"fg-container container-fluid fg-container-fluid fg-container-lvl--1 fg-container-no-padding\"><div class=\"fg-row row    \" ><div class=\"ffb-id-hpse41s fg-col col-xs-12 col-xs-offset-0 col-xs-pull-0 col-xs-push-0 col-md-12 fg-text-dark\"><div class=\"ffb-id-hpsevi2 promo-block-v9 fg-el-has-bg fg-text-light\"><span class=\"fg-bg\"><span data-fg-bg=\"{&quot;type&quot;:&quot;color&quot;,&quot;opacity&quot;:1,&quot;color&quot;:&quot;&quot;}\" class=\"fg-bg-layer fg-bg-type-color \" style=\"opacity: 1; background-color: ;\"><\/span><\/span><h2 class=\"promo-block-v9-title fg-text-light ffb-title-1\">In the News<\/h2><\/div><\/div><\/div><\/div><\/section><style>.ffb-id-hpse41r{ padding-top: 150px;padding-bottom: 80px;}@media (min-width:768px) { .ffb-id-hpsevi2 .ffb-title-1{ font-size: 90px !important;}}@media (min-width:768px) { .ffb-id-hpsevi2 .ffb-title-1 ,.ffb-id-hpsevi2 .ffb-title-1:before,.ffb-id-hpsevi2 .ffb-title-1:after,.ffb-id-hpsevi2 .ffb-title-1:hover,.ffb-id-hpsevi2 .ffb-title-1:focus,.ffb-id-hpsevi2 .ffb-title-1 *,.ffb-id-hpsevi2 .ffb-title-1 *:before,.ffb-id-hpsevi2 .ffb-title-1 *:after,.ffb-id-hpsevi2 .ffb-title-1 *:hover,.ffb-id-hpsevi2 .ffb-title-1 *:focus{ font-size: 90px !important;}}@media (min-width:992px) { .ffb-id-hpsevi2 .ffb-title-1{ font-size: 90px !important;}}@media (min-width:992px) { .ffb-id-hpsevi2 .ffb-title-1 ,.ffb-id-hpsevi2 .ffb-title-1:before,.ffb-id-hpsevi2 .ffb-title-1:after,.ffb-id-hpsevi2 .ffb-title-1:hover,.ffb-id-hpsevi2 .ffb-title-1:focus,.ffb-id-hpsevi2 .ffb-title-1 *,.ffb-id-hpsevi2 .ffb-title-1 *:before,.ffb-id-hpsevi2 .ffb-title-1 *:after,.ffb-id-hpsevi2 .ffb-title-1 *:hover,.ffb-id-hpsevi2 .ffb-title-1 *:focus{ font-size: 90px !important;}}@media (min-width:1200px) { .ffb-id-hpsevi2 .ffb-title-1{ font-size: 90px !important;}}@media (min-width:1200px) { .ffb-id-hpsevi2 .ffb-title-1 ,.ffb-id-hpsevi2 .ffb-title-1:before,.ffb-id-hpsevi2 .ffb-title-1:after,.ffb-id-hpsevi2 .ffb-title-1:hover,.ffb-id-hpsevi2 .ffb-title-1:focus,.ffb-id-hpsevi2 .ffb-title-1 *,.ffb-id-hpsevi2 .ffb-title-1 *:before,.ffb-id-hpsevi2 .ffb-title-1 *:after,.ffb-id-hpsevi2 .ffb-title-1 *:hover,.ffb-id-hpsevi2 .ffb-title-1 *:focus{ font-size: 90px !important;}}<\/style><script type=\"text\/javascript\"><\/script><section class=\"ffb-id-h7mga8q fg-section fg-el-has-bg fg-text-dark\"><span class=\"fg-bg\"><span data-fg-bg=\"{&quot;type&quot;:&quot;color&quot;,&quot;opacity&quot;:1,&quot;color&quot;:&quot;#f7f8fa&quot;}\" class=\"fg-bg-layer fg-bg-type-color \" style=\"opacity: 1; background-color: #f7f8fa;\"><\/span><span data-fg-bg=\"{&quot;type&quot;:&quot;parallax&quot;,&quot;url&quot;:&quot;https:\\\/\\\/jordansguardianangels.org\\\/wp-content\\\/uploads\\\/2017\\\/10\\\/bundle-1853667_1920.jpg&quot;,&quot;opacity&quot;:&quot;.1&quot;,&quot;width&quot;:&quot;1920&quot;,&quot;height&quot;:&quot;1280&quot;,&quot;speed&quot;:&quot;50&quot;,&quot;size&quot;:&quot;cover&quot;,&quot;offset_h&quot;:&quot;50&quot;,&quot;offset_v&quot;:&quot;50&quot;}\" class=\"fg-bg-layer fg-bg-type-parallax \" style=\"opacity: .1; background-image: url(&quot;https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/bundle-1853667_1920.jpg&quot;);\"><\/span><\/span><div class=\"fg-container container fg-container-large fg-container-lvl--1 \"><div class=\"fg-row row    \" ><div class=\"ffb-id-h7mga8r fg-col col-xs-12 col-md-12 fg-text-dark\"><section class=\"ffb-id-qognt8s section-heading fg-text-dark\"><h2 class=\"fg-text-dark ffb-h2-1\">TV, Newspapers &amp; Podcasts<\/h2><div class=\"ff-richtext paragraph fg-text-dark ffb-paragraph-2\"><\/p>\n<p>Our mission to cure Jordan's Syndrome is making international news.<\/p>\n<p>Watch, read and listen below!<\/p>\n<p><\/div><\/section><\/div><div class=\"ffb-id-65136btb fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65136btc fg-row row     fg-text-dark\"><div class=\"ffb-id-65136ubr fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65136ubs work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2022\/09\/Global-Genes-Award-Release.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Top Rare Disease Award Given to Founders of Jordan&#039;s Guardian Angels\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/9742bc2ecf9c94422d781f9a595526a3_NEWScreen-Shot-2017-10-05-at-1.15.46-PM-360-408-c-90.jpg\"  alt=\"NEWScreen Shot 2017-10-05 at 1.15.46 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2022\/09\/Global-Genes-Award-Release.pdf\"  target=\"_blank\"  title=\"Read More\" >Top Rare Disease Award Given to Founders of Jordan's Guardian Angels<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>September 14, 2022<\/strong><\/p>\n<p>Global Genes, recognized Cynthia and Joe Lang, co-founders of Jordan&rsquo;s Guardian Angels, with the Rare Founders Award at its annual Rare Champions of Hope Awards.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65136btp fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65136btr work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2022\/09\/Global-Genes-Honors-a-Diverse-Group-of-International-Rare-Disease-Leaders-at-the-2022-RARE-Champions.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Global Genes Honors International Rare Disease Leaders\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/def3cc284d74e10477be71108aaa5037_dna-g090fd2659_1280-360-408-c-90.jpg\"  alt=\"dna-g090fd2659_1280\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2022\/09\/Global-Genes-Honors-a-Diverse-Group-of-International-Rare-Disease-Leaders-at-the-2022-RARE-Champions.pdf\"  target=\"_blank\"  title=\"Read More\" >Global Genes Honors International Rare Disease Leaders<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>September 14, 2022<\/strong><\/p>\n<p>Global Genes, a leading rare disease patient advocacy organization, announced its annual RARE Champions of Hope award winners, including Jordan's Guardian Angels co-founders Cynthia and Joe Lang.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65136bts fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65136btu work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2021\/03\/What-we-can-learn-from-a-revolutionary-herd-of\u2026-Alpacas-by-Anna-Love-Feb-2021-Medium.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"What we can learn from a revolutionary herd of\u2026 Alpacas?\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/f2a15d5a08da97dc91464777fb224a9d_Screen-Shot-2021-03-23-at-10.13.53-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2021-03-23 at 10.13.53 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2021\/03\/What-we-can-learn-from-a-revolutionary-herd-of\u2026-Alpacas-by-Anna-Love-Feb-2021-Medium.pdf\"  target=\"_blank\"  title=\"Read Now\" >What we can learn from a revolutionary herd of\u2026 Alpacas?<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>February 17, 2021<\/strong><\/p>\n<p>This in-depth article describes the efforts of JGA researchers at Vanderbilt University, who are using alpacas to help learn about how we may be able to treat Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-65131j1h fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-651332un fg-row row     fg-text-dark\"><div class=\"ffb-id-65136btm fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65136bto work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/08\/How-UCD-research-could-unlock-clues-to-Alzheimer\u2019s-The-Sacramento-Bee.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Sac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer\u2019s, Cancer\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/92122c92023330783569917d0b2c9f0c_Screen-Shot-2018-08-28-at-11.22.06-AM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-08-28 at 11.22.06 AM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/08\/How-UCD-research-could-unlock-clues-to-Alzheimer\u2019s-The-Sacramento-Bee.pdf\"  target=\"_blank\"  title=\"Read More\" >Sac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer\u2019s, Cancer<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 22, 2018<\/strong><\/p>\n<p>The Sacramento Bee interviews our newest research partners about the hope and potential for a cure to Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65136tbn fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65136tbo work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/08\/How-UCD-research-could-unlock-clues-to-Alzheimer\u2019s-The-Sacramento-Bee.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Sac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer\u2019s, Cancer\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/92122c92023330783569917d0b2c9f0c_Screen-Shot-2018-08-28-at-11.22.06-AM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-08-28 at 11.22.06 AM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/08\/How-UCD-research-could-unlock-clues-to-Alzheimer\u2019s-The-Sacramento-Bee.pdf\"  target=\"_blank\"  title=\"Read More\" >Sac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer\u2019s, Cancer<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 22, 2018<\/strong><\/p>\n<p>The Sacramento Bee interviews our newest research partners about the hope and potential for a cure to Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-h7ncook fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-h7ncoon work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=wmfS6374zpA\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"Local Girl May Hold Key to Unlocking Certain Disorders and Diseases\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/d477f596ea134d63a76ff2debe1deabc_CBS13-SCREENCAP-360-408-c-90.jpg\"  alt=\"CBS13 SCREENCAP\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=wmfS6374zpA\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >CBS Sacramento: Local Girl May Hold Key to Unlocking Certain Disorders and Diseases<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><b>May 1, 2017<\/b><\/p>\n<p>Jordan Lang is an 11-year-old Sacramento girl who might hold the genetic key to helping doctors unlock the secrets of certain intellectual disabilities, autism, Alzheimer&rsquo;s and cancer.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-65135ck9 fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65135cka fg-row row     fg-text-dark\"><div class=\"ffb-id-65135ckk fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65135ckm work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=3eXSDrZ7YDY\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"Ivanhoe Web: Alpacas&#039; Antibodies Create More Options for Human Patients\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/b9fe8b6df182d00fb3e672a6c7e660f3_Screen-Shot-2020-01-13-at-8.17.46-AM-360-408-c-90.jpg\"  alt=\"Screen Shot 2020-01-13 at 8.17.46 AM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=3eXSDrZ7YDY\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >Ivanhoe Web: Alpacas' Antibodies Create More Options for Human Patients<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>December 2, 2019<\/strong><\/p>\n<p>Ivanhoe Web, an online news platform for medical breakthroughs, featured the efforts of Jordan's Syndrome researchers to develop antibodies using alpacas.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65135ckn fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65135ckp work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2020\/01\/2aea9c971e4e4c05b5fa7c704a365443-compressed-7bad4645c9e69f7ff7eb6ff7677e114c.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"The Columbian: After 10-year Search, Vancouver Family Finds Cause of Son\u2019s Seizures\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/810c163030e13872e8fd31ec86580334_Screen-Shot-2020-01-15-at-3.43.40-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2020-01-15 at 3.43.40 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2020\/01\/2aea9c971e4e4c05b5fa7c704a365443-compressed-7bad4645c9e69f7ff7eb6ff7677e114c.pdf\"  target=\"_blank\"  title=\"Read More\" >The Columbian: After 10-year Search, Vancouver Family Finds Cause of Son\u2019s Seizures<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>October 4, 2019<\/strong><\/p>\n<p>The Columbian in Vancouver tells the story of one of our families who, after 10 years of searching, recently discovered their loved one has Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65135ckq fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65135cks work-v1 fg-text-dark\"><a href=\"https:\/\/kfbk.iheart.com\/featured\/sam-shane\/content\/2019-06-21-local-nonprofit-seeks-cure-for-rare-disease-patient-zero-in-sacramento\/\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"KFBK-FM: Local Nonprofit Seeks Cure For Rare Disease, Patient Zero In Sacramento\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/ec65dfe8dc7be3deb4838d11bdb34f5e_Screen-Shot-2019-06-23-at-10.05.50-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2019-06-23 at 10.05.50 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Listen Here<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/kfbk.iheart.com\/featured\/sam-shane\/content\/2019-06-21-local-nonprofit-seeks-cure-for-rare-disease-patient-zero-in-sacramento\/\"  target=\"_blank\"  title=\"Listen Here\" >KFBK-FM: Local Nonprofit Seeks Cure For Rare Disease, Patient Zero In Sacramento<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>June 21, 2019<\/strong><\/p>\n<p>The co-founders of Jordan's Guardian Angels, Joe and Cynthia Lang, spoke about their mission on News 93.1 KFBK, a Sacramento radio station.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-65134igg fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65134igh fg-row row     fg-text-dark\"><div class=\"ffb-id-65134igr fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65134igt work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2019\/02\/On-a-mission-12-million-state-appropriation-earmarked-for-Jordans-syndrome.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"UC Davis Health: On a Mission \u2013 $12 Million State Appropriation Earmarked for Jordan&#039;s Syndrome\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/88c254f1ba0629cdb0a82cbe9c5e7df0_Screen-Shot-2019-02-04-at-2.12.51-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2019-02-04 at 2.12.51 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2019\/02\/On-a-mission-12-million-state-appropriation-earmarked-for-Jordans-syndrome.pdf\"  target=\"_blank\"  title=\"Read More\" >UC Davis Health: On a Mission \u2013 $12 Million State Appropriation Earmarked for Jordan's Syndrome<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>July 25, 2018<\/strong><\/p>\n<p>Nine teams, including UC Davis stem cell researchers, pursue a cure for rare disorder with links to autism, Alzheimer's disease and cancer.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65134igu fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65134ih0 work-v1 fg-text-dark\"><a href=\"https:\/\/vimeo.com\/280295552\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"FOX Denver: Denver-Area Girl One of Just 64 in World With Rare Genetic Mutation\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/6fdfbf3ba954fb3fbb6c09a6112d0a05_Screen-Shot-2018-07-16-at-7.46.24-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-07-16 at 7.46.24 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/vimeo.com\/280295552\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >FOX Denver: Denver-Area Girl One of Just 64 in World With Rare Genetic Mutation<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>July 14, 2018<\/strong><\/p>\n<p>KDVR in Denver, CO, featured the Jordan's Guardian Angels researchers workshop and told the story of Yara, who has been diagnosed with Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65134ih1 fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65134ih3 work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Sac-Bee-Lobbyist-fights-for-research-funding-for-daughters-rare-diseases-PP2R5D-The-Sacramento-Bee.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Sacramento Bee: This lobbyist is fighting for the biggest cause of his career: his daughter\ufeff\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/2d62a2c7aa94dc398bcd66cb92ee9e33_Lede_JORDAN_0003-360-408-c-90.jpeg\"  alt=\"Lede_JORDAN_0003\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Sac-Bee-Lobbyist-fights-for-research-funding-for-daughters-rare-diseases-PP2R5D-The-Sacramento-Bee.pdf\"  target=\"_blank\"  title=\"Read More\" >Sacramento Bee: This lobbyist is fighting for the biggest cause of his career: his daughter\ufeff<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 5, 2017<\/strong><\/p>\n<p>The Sacramento Bee traveled to Washington, D.C., for the first Jordan's Syndrome family conference, where families from around the world gathered with researchers to officially begin the research.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-65133rk5 fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65133rk6 fg-row row     fg-text-dark\"><div class=\"ffb-id-65133rkg fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65133rki work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=xPw347BbiRA\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"CBS Houston: Houston Family Fights for a Cure\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/79a7114ca40b317fe083c4f357e93b50_Screen-Shot-2018-05-16-at-10.22.17-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-05-16 at 10.22.17 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=xPw347BbiRA\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >CBS Houston: Houston Family Fights for a Cure<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>April 5, 2018<\/strong><\/p>\n<p>KHOU in Houston, TX, featured the story of the Huber family and their son Hutton, who has been diagnosed with Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65133rkj fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65133rkl work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/07\/Does-Your-Child-Have-Jordans-Syndrome-IVN.us_.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"IVN: Does Your Child Have Jordan&#039;s Syndrome?\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/706aa168abcb6699140fec3b3ee4a7b0_Screen-Shot-2018-07-16-at-7.49.26-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-07-16 at 7.49.26 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/07\/Does-Your-Child-Have-Jordans-Syndrome-IVN.us_.pdf\"  target=\"_blank\"  title=\"Read More\" >IVN: Does Your Child Have Jordan's Syndrome?<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>July 10, 2018<\/strong><\/p>\n<p>IVN, an indepedent news platform, featured an in-depth story about the history of Jordan's Guardian Angels and the potential worldwide impact of our research into Jordan's Syndrome.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-65133rkm fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-65133rko work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=zm_HvVTrf2o\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"CBS Sacramento: Families Share Their Journeys on Rare Disease Day\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/3dd7ba682bccea0d9ab16b159767efc9_Screen-Shot-2018-03-05-at-11.27.49-AM-360-408-c-90.jpg\"  alt=\"Screen Shot 2018-03-05 at 11.27.49 AM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=zm_HvVTrf2o\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >CBS Sacramento: Families Share Their Journeys on Rare Disease Day<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>February 28, 2018<\/strong><\/p>\n<p>In celebration of Rare Disease Day, families from around the world with children diagnosed with a rare genetic mutation potentially linked to autism and Alzheimer's disease, more commonly known as Jordan's Syndrome, connected on Facebook Live to spread their message and stories.&nbsp;<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-6512tt3o fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65131rn1 fg-row row     fg-text-dark\"><div class=\"ffb-id-1vui75sm fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1vui75sn work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=QTgjgQ6ehCM\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"FOX5 DC: Families with Jordan&#039;s Syndrome Meet For Study to Learn More About Rare Gene Mutation\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/90869c829d481920d036dd6a41208f83_FOX5-2-SCREENCAP-360-408-c-90.jpg\"  alt=\"FOX5 2 - SCREENCAP\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=QTgjgQ6ehCM\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >FOX5 DC: Families with Jordan's Syndrome Meet For Study to Learn More About Rare Gene Mutation<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 10, 2017<\/strong><\/p>\n<p>Families from around the world who have children with a rare gene mutation came to Washington D.C. to participate in a study that could lead to a medical breakthrough.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-h7nd7mt fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7k6rak work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=e8k0cFIJ-_g\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"Israeli TV: Inspiring Story of the Avni&#039;s, Who Are Caring for Their Daughter Who Suffers From a Rare Syndrome\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/9454b2eec4b0ca320fcb4aaff4ea97c9_Screen-Shot-2017-10-10-at-9.59.49-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 9.59.49 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=e8k0cFIJ-_g\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >Israeli TV: Inspiring Story of the Avni's, Who Are Caring for Their Daughter Who Suffers From a Rare Syndrome<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>September 28, 2017<\/strong><\/p>\n<p>Michal (two-and-a-half years old) was born with a very rare syndrome &ndash; a mutation in the gene PPP2R5D. This mutation severely affects all of her development.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7lp61r fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7lp61s work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=r6Qwefr3Kk4\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"BBC: Girl, 10, one of 35 in world with PPP2R5D condition\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/797443e05892a6a15943d70b46b3e0fe_BBC-Screencap-360-408-c-90.jpg\"  alt=\"BBC Screencap\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=r6Qwefr3Kk4\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >BBC: Girl, 10, one of 35 in world with PPP2R5D condition<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 22, 2017<\/strong><\/p>\n<p>Hermione Heseltine is one of only 35 people in the world to have a PPP2R5D genetic disease, which was only discovered two years ago.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-6512ts1c fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-65130jmd fg-row row     fg-text-dark\"><div class=\"ffb-id-6513106s fg-col col-xs-12 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7lp3pk work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Family-hopes-research-into-rare-disease-will-help-others-The-Sacramento-Bee-1.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Sacramento Bee: Their son has a rare genetic disorder. But here\u2019s why they don\u2019t give up hope\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/d604a9e648fd6f0c0e3db6553a124a68_Screen-Shot-2017-10-10-at-10.17.25-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 10.17.25 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Family-hopes-research-into-rare-disease-will-help-others-The-Sacramento-Bee-1.pdf\"  target=\"_blank\"  title=\"Read More\" >Sacramento Bee: Their son has a rare genetic disorder. But here\u2019s why they don\u2019t give up hope<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 12, 2017<\/strong><\/p>\n<p>Liam couldn&rsquo;t nurse, wouldn&rsquo;t look people in their eyes and didn&rsquo;t hit milestones. At their doctor&rsquo;s suggestion, they had his genome mapped in 2015. The result showed a mutation on one gene, known as PPP2R5D.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7n7dnf fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7n7dng work-v1 fg-text-dark\"><a href=\"https:\/\/vimeo.com\/237686712\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Univision Phoenix: Padres de Mesa sufren por una extra\u00f1a condici\u00f3n de su hija\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/399b2c3058611352d59ce32a9694e14d_Screen-Shot-2017-10-10-at-10.39.15-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 10.39.15 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/vimeo.com\/237686712\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >Univision Phoenix: Padres de Mesa sufren por una extra\u00f1a condici\u00f3n de su hija<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 10, 2017<\/strong><\/p>\n<p>La peque&ntilde;a sufre una extra&ntilde;a mutaci&oacute;n gen&eacute;tica que le provoca diversas alteraciones a su salud y no le permite llevar una vida normal.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7mbcev fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7mbcf0 work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Researchers-in-America-one-step-closer-to-cracking-rare-genetic-condition-with-help-of-little-girl-from-Northampton-Northampton-Chronicle-and-Echo.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Northampton Chronicle: Researchers in America one step closer to cracking rare genetic condition with help of Northampton girl\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/3f68d0b3fec1b16114f5542b146a8ee2_Screen-Shot-2017-10-03-at-11.03.04-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-03 at 11.03.04 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Researchers-in-America-one-step-closer-to-cracking-rare-genetic-condition-with-help-of-little-girl-from-Northampton-Northampton-Chronicle-and-Echo.pdf\"  target=\"_blank\"  title=\"Read More\" >Northampton Chronicle: Researchers in America one step closer to cracking rare genetic condition with help of Northampton girl<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 9, 2017<\/strong><\/p>\n<p>Hermione Heseltine, from Abington, was flown out to Washington DC with her family on August 1 to help researchers shed light on a disorder with only 35 known cases in the world.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-6512rc8i fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-6512rosh fg-row row     fg-text-dark\"><div class=\"ffb-id-h7nd9gd fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7k6din work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Donegal-boy-in-far-reaching-US-study-Donegal-Democrat.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Donegal Democrat: Donegal boy in far-reaching US study\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e1532755eaa9dd8ece9d8c4a74b8acae_Screen-Shot-2017-10-10-at-10.03.04-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 10.03.04 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Donegal-boy-in-far-reaching-US-study-Donegal-Democrat.pdf\"  target=\"_blank\"  title=\"Read More\" >Donegal Democrat: Donegal boy in far-reaching US study<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 2, 2017<\/strong><\/p>\n<p>A Donegal boy has been found to have a very rare gene mutation that researchers hope will provide a key to treatment of cancer, dementia and neurodevelopmental disorders, including autism and intellectual disabilities.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-h7ncook fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-h7ncoon work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=s0OhDxBGx4Y\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"NBC Phoenix: Valley Girl with Rare Disease Set For Groundbreaking Study\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e9d010497b5b890ec4f152028f58c536_ABCPHOENIX-Screencap-360-408-c-90.jpg\"  alt=\"ABCPHOENIX Screencap\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=s0OhDxBGx4Y\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >NBC Phoenix: Valley Girl with Rare Disease Set For Groundbreaking Study<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>August 2, 2017<\/strong><\/p>\n<p>Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7lp0to fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7lp0tp work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=XEXWxDx8xls\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"FOX5 DC: Discovery of Rare Gene Mutation May Help Solve Neurodevelopmental Disorders\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/6830dd4396598490a4fc934c80861026_FOX5-1-SCREENCAP-360-408-c-90.jpg\"  alt=\"FOX5 - 1 SCREENCAP\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=XEXWxDx8xls\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >FOX5 DC: Discovery of Rare Gene Mutation May Help Solve Neurodevelopmental Disorders<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>July 31, 2017<\/strong><\/p>\n<p>Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-6512trs8 fg-col col-xs-12 col-md-12 fg-text-dark\"><div class=\"ffb-id-6512vqgc fg-row row     fg-text-dark\"><div class=\"ffb-id-1k7mbgvj fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7mbgvk work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/04\/LessonsInJoyfulLivingLIVE_2017-07-21.mp3\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Lessons In Joyful Living Podcast: Jordan&#039;s Guardian Angels\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/0a86845c421bbaf5debebe546ae37920_6927-76b9-4a98-8744-aacec3778a8b-360-408-c-90.jpg\"  alt=\"6927-76b9-4a98-8744-aacec3778a8b\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Listen Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2018\/04\/LessonsInJoyfulLivingLIVE_2017-07-21.mp3\"  class=\"freshframework-lightbox-external-video\"  title=\"Listen Now\" >Lessons In Joyful Living Podcast: Jordan's Guardian Angels<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>July 21, 2017<\/strong><\/p>\n<p>Join Kimberly Rinaldi on Lessons in Joyful Living, today she speaks with Jordan's Guardian Angels founder Joe Lang. Jordan is Joe's daughter and the inspiration for current work the foundation is doing that will impact millions.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7nf7bf fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7nf7bg work-v1 fg-text-dark\"><a href=\"https:\/\/www.youtube.com\/watch?v=ItmawcFW9pA\" class=\" work-v1-img-gradient freshframework-lightbox-external-video fg-text-dark ffb-link\" title=\"CBS Sacramento: Study Could Unlock Key to Cure Autism, Alzheimer&#039;s and Cancer\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/8df9927244baca48a49fc1bd9d19fbbd_Screen-Shot-2017-10-10-at-10.42.44-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 10.42.44 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Watch Now<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a  href=\"https:\/\/www.youtube.com\/watch?v=ItmawcFW9pA\"  class=\"freshframework-lightbox-external-video\"  title=\"Watch Now\" >CBS Sacramento: Study Could Unlock Key to Cure Autism, Alzheimer's and Cancer<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>May 1, 2017<\/strong><\/p>\n<p>Dr. Wendy Chung, lead medical investigator for the PPP2R5D study, explains the potential global impacts of the research.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><div class=\"ffb-id-1k7mben8 fg-col col-xs-12 col-sm-6 col-md-4 fg-text-dark\"><section class=\"ffb-id-1k7mben9 work-v1 fg-text-dark\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Scholarship-awarded-to-mum-of-boy-with-rare-disease-Stuff.co_.nz-1.pdf\" target=\"_blank\" class=\"work-v1-img-gradient fg-text-dark ffb-link\" title=\"Taranaki Daily News: Scholarship awarded to mum of boy with rare disease\"><div class=\"work-active-bg\"><\/div><img decoding=\"async\"  class=\"fg-image  img-responsive full-width\"  src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/78348897332a66475b3917c273619a8a_Screen-Shot-2017-10-10-at-10.30.25-PM-360-408-c-90.jpg\"  alt=\"Screen Shot 2017-10-10 at 10.30.25 PM\"  title=\"\"   =\"\" ><span class=\"work-v1-view btn-white-brd btn-base-sm radius-3\">Read More<\/span><\/a><div class=\"work-v1-wrap\"><div class=\"work-v1-content fg-text-dark ffb-content\"><h2 class=\"work-v1-title fg-text-dark ffb-title-1\"><a href=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2017\/10\/Scholarship-awarded-to-mum-of-boy-with-rare-disease-Stuff.co_.nz-1.pdf\"  target=\"_blank\"  title=\"Read More\" >Taranaki Daily News: Scholarship awarded to mum of boy with rare disease<\/a><\/h2><div class=\"work-v1-collapse fg-text-dark ffb-content-2\"><div class=\" ff-richtext\"><\/p>\n<p><strong>October 5, 2016<\/strong><\/p>\n<p>Everyone might have a dream, but one of Emma Crofskey's is coming true.<\/p>\n<p><\/div><\/div><\/div><\/div><\/section><\/div><\/div><\/div><div class=\"ffb-id-65131jd0 fg-col col-xs-12 col-md-4 fg-text-dark\"><\/div><\/div><\/div><\/section><style>.ffb-id-hpse41r{ \npadding-top: 150px;\npadding-bottom: 80px;\n\n}\n@media (min-width:768px) { \n.ffb-id-hpsevi2 .ffb-title-1{ \nfont-size: 90px !important;\n}\n}@media (min-width:768px) { \n.ffb-id-hpsevi2 .ffb-title-1 ,\n.ffb-id-hpsevi2 .ffb-title-1:before,\n.ffb-id-hpsevi2 .ffb-title-1:after,\n.ffb-id-hpsevi2 .ffb-title-1:hover,\n.ffb-id-hpsevi2 .ffb-title-1:focus,\n.ffb-id-hpsevi2 .ffb-title-1 *,\n.ffb-id-hpsevi2 .ffb-title-1 *:before,\n.ffb-id-hpsevi2 .ffb-title-1 *:after,\n.ffb-id-hpsevi2 .ffb-title-1 *:hover,\n.ffb-id-hpsevi2 .ffb-title-1 *:focus{ \nfont-size: 90px !important;\n}\n}@media (min-width:992px) { \n.ffb-id-hpsevi2 .ffb-title-1{ \nfont-size: 90px !important;\n}\n}@media (min-width:992px) { \n.ffb-id-hpsevi2 .ffb-title-1 ,\n.ffb-id-hpsevi2 .ffb-title-1:before,\n.ffb-id-hpsevi2 .ffb-title-1:after,\n.ffb-id-hpsevi2 .ffb-title-1:hover,\n.ffb-id-hpsevi2 .ffb-title-1:focus,\n.ffb-id-hpsevi2 .ffb-title-1 *,\n.ffb-id-hpsevi2 .ffb-title-1 *:before,\n.ffb-id-hpsevi2 .ffb-title-1 *:after,\n.ffb-id-hpsevi2 .ffb-title-1 *:hover,\n.ffb-id-hpsevi2 .ffb-title-1 *:focus{ \nfont-size: 90px !important;\n}\n}@media (min-width:1200px) { \n.ffb-id-hpsevi2 .ffb-title-1{ \nfont-size: 90px !important;\n}\n}@media (min-width:1200px) { \n.ffb-id-hpsevi2 .ffb-title-1 ,\n.ffb-id-hpsevi2 .ffb-title-1:before,\n.ffb-id-hpsevi2 .ffb-title-1:after,\n.ffb-id-hpsevi2 .ffb-title-1:hover,\n.ffb-id-hpsevi2 .ffb-title-1:focus,\n.ffb-id-hpsevi2 .ffb-title-1 *,\n.ffb-id-hpsevi2 .ffb-title-1 *:before,\n.ffb-id-hpsevi2 .ffb-title-1 *:after,\n.ffb-id-hpsevi2 .ffb-title-1 *:hover,\n.ffb-id-hpsevi2 .ffb-title-1 *:focus{ \nfont-size: 90px !important;\n}\n}.ffb-id-h7mga8q{ padding-top: 80px;padding-bottom: 80px;}@media (min-width:992px) { .ffb-id-h7mga8q{ margin-bottom: -40px;}}@media (min-width:1200px) { .ffb-id-h7mga8q{ margin-bottom: -40px;}}.ffb-id-1k7mben9 .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7mben9 .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7mben9 .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7mben9.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7nf7bg .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7nf7bg .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7nf7bg .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7nf7bg.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7mbgvk .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7mbgvk .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7mbgvk .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7mbgvk.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7lp0tp .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7lp0tp .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7lp0tp .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7lp0tp.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7k6din .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7k6din .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7k6din .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7k6din.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7mbcf0 .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7mbcf0 .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7mbcf0 .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7mbcf0.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7n7dng .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7n7dng .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7n7dng .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7n7dng.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7lp3pk .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7lp3pk .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7lp3pk .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7lp3pk.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7lp61s .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 0.3);}.ffb-id-1k7lp61s .ffb-content .ffb-title-1:hover a{ color: #1d428a !important;}.ffb-id-1k7lp61s .work-v1-content{ background-color: #ffffff;}.ffb-id-1k7lp61s.work-v1{ box-shadow: 0 2px 5px 3px rgba(0,0,0,0.07);}.ffb-id-1k7k6rak .ffb-link  .work-active-bg{ background-color: rgba(52, 52, 60, 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