{"id":22359,"date":"2023-03-23T04:17:45","date_gmt":"2023-03-23T04:17:45","guid":{"rendered":"https:\/\/jordansguardianangels.org\/?p=22359"},"modified":"2023-03-23T04:18:32","modified_gmt":"2023-03-23T04:18:32","slug":"virtual-family-conference-brings-global-community-together","status":"publish","type":"post","link":"https:\/\/jordansguardianangels.org\/2023\/03\/23\/virtual-family-conference-brings-global-community-together\/","title":{"rendered":"Virtual Family Conference Brings Global Community Together"},"content":{"rendered":"<section class=\"ffb-id-i1u787f fg-section fg-text-dark\"><div class=\"fg-container container fg-container-large fg-container-lvl--1 \"><div class=\"fg-row row    \" ><div class=\"ffb-id-i1u787g fg-col col-xs-12 col-md-9 col-md-push-3 fg-text-dark\"><div class=\"ffb-id-i1u787h fg-paragraph ff-richtext text-left    fg-text-dark\"><\/p>\n<p>What a joy it was to see so many of your faces! On Saturday, March 11th, more than 85 people joined our Virtual Family Conference that brought our community together around the world. There were introductions of our JGA Team with updates on our high-level goals for the year, a message from our Co-Founder Joe Lang and research updates from Dr. Wendy Chung.<br \/>&nbsp;<br \/>We also debuted our brand new JGA video! It&rsquo;s now available in English, French, Spanish, German, Italian and Arabic on <a href=\"https:\/\/www.youtube.com\/channel\/UCaFqEj_N-EcBREVi801uGXg\">our YouTube channel<\/a>.&nbsp;<\/p>\n<p>Here is the English version to get you started: <a href=\"https:\/\/www.youtube.com\/watch?v=4BgBOYa2Suo\">https:\/\/www.youtube.com\/watch?v=4BgBOYa2Suo<\/a>.<\/p>\n<p><\/div><div class=\"ffb-id-5q9l3mp2 ffg-empty-space fg-text-dark\"><\/div><img decoding=\"async\" class=\"ffb-id-6inbu4a9 fg-image  img-responsive full-width fg-text-dark\" srcset=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2023\/03\/2-0-2-3-Community-Meeting-Image.jpeg 1920w, https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e1c20baf7fc8f326fb2b3c83d5607aac_2-0-2-3-Community-Meeting-Image-320-c-100.jpeg 320w, https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e1c20baf7fc8f326fb2b3c83d5607aac_2-0-2-3-Community-Meeting-Image-768-c-100.jpeg 768w, https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e1c20baf7fc8f326fb2b3c83d5607aac_2-0-2-3-Community-Meeting-Image-992-c-100.jpeg 992w, https:\/\/jordansguardianangels.org\/wp-content\/uploads\/freshizer\/e1c20baf7fc8f326fb2b3c83d5607aac_2-0-2-3-Community-Meeting-Image-1200-c-100.jpeg 1200w\" sizes=\"(max-width: 1920px) 100vw, 1920px\" src=\"https:\/\/jordansguardianangels.org\/wp-content\/uploads\/2023\/03\/2-0-2-3-Community-Meeting-Image.jpeg\" alt=\"2 0 2 3 Community Meeting Image\"><div class=\"ffb-id-6k936132 ffg-empty-space fg-text-dark\"><\/div><div class=\"ffb-id-6k934odt fg-paragraph ff-richtext text-left    fg-text-dark\"><\/p>\n<p>Some takeaways and action items for our community: <br \/>&nbsp;<br \/>-Please sign up with <a href=\"http:\/\/simonssearchlight.org\">Simons Searchlight<\/a>. This is imperative as we move to clinical trials. This information will help move the research forward and the numbers help with the negotiations with pharmaceutical companies. Now is the time, please don&rsquo;t delay. (If you have any questions, there are step by step instructions on our private family Facebook page.)<br \/>&nbsp;<br \/>-Dr. Chung and the Columbia team went over the medical history data from Simons Searchlight and the data collected at the JGA 2022 Family Conference in New York. Collected data from the children who were in attendance match the reported data in Simons Searchlight which indicates the tests utilized were good measures to use going forward.<br \/>&nbsp;<br \/>Thank you to all of you who could be there and for those who were not able to be, don&rsquo;t worry, here is a link so you can get caught up! We are all looking forward to seeing you again soon.<br \/>&nbsp;<br \/>Click here for the recording of the conference in case you missed it:&nbsp;<a href=\"https:\/\/www.youtube.com\/watch?v=z-WScYIewKQ\">https:\/\/www.youtube.com\/watch?v=z-WScYIewKQ<\/a>.<\/p>\n<p><\/div><\/div><div class=\"ffb-id-i1u787q fg-col col-xs-12 col-md-3 col-md-pull-9 fg-text-dark\"><section class=\"ffb-id-4ghfjd11 portfolio-sidebar text-left fg-text-dark\"><div class=\"portfolio-sidebar-widget portfolio-sidebar-published fg-text-dark ffb-published-1\"><h3 class=\"portfolio-item-subitem-title fg-text-dark ffb-title\">Published<\/h3><p class=\"portfolio-item-subitem-paragraph fg-text-dark ffb-date-format\">March 23, 2023<\/p><\/div><div class=\"portfolio-sidebar-widget portfolio-sidebar-share fg-text-dark ffb-share-4\"><h3 class=\"portfolio-item-subitem-title fg-text-dark ffb-title\">Share<\/h3><ul class=\"list-inline\"><li class=\"theme-icons-wrap fg-text-dark ffb-icon1-4-1\"><a href=\"https:\/\/www.facebook.com\/sharer\/sharer.php?u=https%3A%2F%2Fjordansguardianangels.org%2F2023%2F03%2F23%2Fvirtual-family-conference-brings-global-community-together%2F\" target=\"_blank\" ><i class=\"theme-icons ff-custom-color theme-icons-xs radius-circle ff-font-awesome4 icon-facebook  \"><\/i><\/a><\/li><li class=\"theme-icons-wrap fg-text-dark ffb-icon1-4-2\"><a href=\"https:\/\/twitter.com\/intent\/tweet?url=https%3A%2F%2Fjordansguardianangels.org%2F2023%2F03%2F23%2Fvirtual-family-conference-brings-global-community-together%2F\" target=\"_blank\" ><i class=\"theme-icons ff-custom-color theme-icons-xs radius-circle ff-font-awesome4 icon-twitter  \"><\/i><\/a><\/li><li class=\"theme-icons-wrap fg-text-dark ffb-icon1-4-3\"><a href=\"#\" ><i class=\"theme-icons ff-custom-color theme-icons-xs radius-circle ff-font-awesome4 icon-pinterest-p  \"><\/i><\/a><\/li><li class=\"theme-icons-wrap fg-text-dark ffb-icon1-4-4\"><a href=\"#\" ><i class=\"theme-icons ff-custom-color 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