In the News
TV, Newspapers & Podcasts
Our mission to cure Jordan's Syndrome is making international news.
Watch, read and listen below!
Read MoreTop Rare Disease Award Given to Founders of Jordan's Guardian Angels
September 14, 2022
Global Genes, recognized Cynthia and Joe Lang, co-founders of Jordan’s Guardian Angels, with the Rare Founders Award at its annual Rare Champions of Hope Awards.
Read MoreGlobal Genes Honors International Rare Disease Leaders
September 14, 2022
Global Genes, a leading rare disease patient advocacy organization, announced its annual RARE Champions of Hope award winners, including Jordan's Guardian Angels co-founders Cynthia and Joe Lang.
Read NowWhat we can learn from a revolutionary herd of… Alpacas?
February 17, 2021
This in-depth article describes the efforts of JGA researchers at Vanderbilt University, who are using alpacas to help learn about how we may be able to treat Jordan's Syndrome.
Read MoreSac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer’s, Cancer
August 22, 2018
The Sacramento Bee interviews our newest research partners about the hope and potential for a cure to Jordan's Syndrome.
Read MoreSac Bee: How UCD Research of Rare Genetic Mutation Could Unlock Clues to Alzheimer’s, Cancer
August 22, 2018
The Sacramento Bee interviews our newest research partners about the hope and potential for a cure to Jordan's Syndrome.
Watch NowCBS Sacramento: Local Girl May Hold Key to Unlocking Certain Disorders and Diseases
May 1, 2017
Jordan Lang is an 11-year-old Sacramento girl who might hold the genetic key to helping doctors unlock the secrets of certain intellectual disabilities, autism, Alzheimer’s and cancer.
Watch NowIvanhoe Web: Alpacas' Antibodies Create More Options for Human Patients
December 2, 2019
Ivanhoe Web, an online news platform for medical breakthroughs, featured the efforts of Jordan's Syndrome researchers to develop antibodies using alpacas.
Read MoreThe Columbian: After 10-year Search, Vancouver Family Finds Cause of Son’s Seizures
October 4, 2019
The Columbian in Vancouver tells the story of one of our families who, after 10 years of searching, recently discovered their loved one has Jordan's Syndrome.
Listen HereKFBK-FM: Local Nonprofit Seeks Cure For Rare Disease, Patient Zero In Sacramento
June 21, 2019
The co-founders of Jordan's Guardian Angels, Joe and Cynthia Lang, spoke about their mission on News 93.1 KFBK, a Sacramento radio station.
Read MoreUC Davis Health: On a Mission – $12 Million State Appropriation Earmarked for Jordan's Syndrome
July 25, 2018
Nine teams, including UC Davis stem cell researchers, pursue a cure for rare disorder with links to autism, Alzheimer's disease and cancer.
Watch NowFOX Denver: Denver-Area Girl One of Just 64 in World With Rare Genetic Mutation
July 14, 2018
KDVR in Denver, CO, featured the Jordan's Guardian Angels researchers workshop and told the story of Yara, who has been diagnosed with Jordan's Syndrome.
Read MoreSacramento Bee: This lobbyist is fighting for the biggest cause of his career: his daughter
August 5, 2017
The Sacramento Bee traveled to Washington, D.C., for the first Jordan's Syndrome family conference, where families from around the world gathered with researchers to officially begin the research.
Watch NowCBS Houston: Houston Family Fights for a Cure
April 5, 2018
KHOU in Houston, TX, featured the story of the Huber family and their son Hutton, who has been diagnosed with Jordan's Syndrome.
Read MoreIVN: Does Your Child Have Jordan's Syndrome?
July 10, 2018
IVN, an indepedent news platform, featured an in-depth story about the history of Jordan's Guardian Angels and the potential worldwide impact of our research into Jordan's Syndrome.
Watch NowCBS Sacramento: Families Share Their Journeys on Rare Disease Day
February 28, 2018
In celebration of Rare Disease Day, families from around the world with children diagnosed with a rare genetic mutation potentially linked to autism and Alzheimer's disease, more commonly known as Jordan's Syndrome, connected on Facebook Live to spread their message and stories.
Watch NowFOX5 DC: Families with Jordan's Syndrome Meet For Study to Learn More About Rare Gene Mutation
August 10, 2017
Families from around the world who have children with a rare gene mutation came to Washington D.C. to participate in a study that could lead to a medical breakthrough.
Watch NowIsraeli TV: Inspiring Story of the Avni's, Who Are Caring for Their Daughter Who Suffers From a Rare Syndrome
September 28, 2017
Michal (two-and-a-half years old) was born with a very rare syndrome – a mutation in the gene PPP2R5D. This mutation severely affects all of her development.
Watch NowBBC: Girl, 10, one of 35 in world with PPP2R5D condition
August 22, 2017
Hermione Heseltine is one of only 35 people in the world to have a PPP2R5D genetic disease, which was only discovered two years ago.
Read MoreSacramento Bee: Their son has a rare genetic disorder. But here’s why they don’t give up hope
August 12, 2017
Liam couldn’t nurse, wouldn’t look people in their eyes and didn’t hit milestones. At their doctor’s suggestion, they had his genome mapped in 2015. The result showed a mutation on one gene, known as PPP2R5D.
Watch NowUnivision Phoenix: Padres de Mesa sufren por una extraña condición de su hija
August 10, 2017
La pequeña sufre una extraña mutación genética que le provoca diversas alteraciones a su salud y no le permite llevar una vida normal.
Read MoreNorthampton Chronicle: Researchers in America one step closer to cracking rare genetic condition with help of Northampton girl
August 9, 2017
Hermione Heseltine, from Abington, was flown out to Washington DC with her family on August 1 to help researchers shed light on a disorder with only 35 known cases in the world.
Read MoreDonegal Democrat: Donegal boy in far-reaching US study
August 2, 2017
A Donegal boy has been found to have a very rare gene mutation that researchers hope will provide a key to treatment of cancer, dementia and neurodevelopmental disorders, including autism and intellectual disabilities.
Watch NowNBC Phoenix: Valley Girl with Rare Disease Set For Groundbreaking Study
August 2, 2017
Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.
Watch NowFOX5 DC: Discovery of Rare Gene Mutation May Help Solve Neurodevelopmental Disorders
July 31, 2017
Avianna, a young girl in the Phoenix area, was diagnosed with a rare genetic disorder referred to as PPP2R5D. To date, only dozens of people in the world have been diagnosed.
Listen NowLessons In Joyful Living Podcast: Jordan's Guardian Angels
July 21, 2017
Join Kimberly Rinaldi on Lessons in Joyful Living, today she speaks with Jordan's Guardian Angels founder Joe Lang. Jordan is Joe's daughter and the inspiration for current work the foundation is doing that will impact millions.
Watch NowCBS Sacramento: Study Could Unlock Key to Cure Autism, Alzheimer's and Cancer
May 1, 2017
Dr. Wendy Chung, lead medical investigator for the PPP2R5D study, explains the potential global impacts of the research.
Read MoreTaranaki Daily News: Scholarship awarded to mum of boy with rare disease
October 5, 2016
Everyone might have a dream, but one of Emma Crofskey's is coming true.
