On February 28th, Rare Disease Day, families from around the world with children diagnosed with a rare genetic mutation potentially linked to autism and Alzheimer's disease, more commonly known as Jordan's Syndrome, will connect on Facebook Live to spread their message and stories.
WHO: Families from around the world with children diagnosed with Jordan's Syndrome, including Carole Bakhos, Nancy DeOrta, Joe Lang, Fernando James Plata, and Malinda Burke
WHAT: Rare Disease Day with PPP2R5D Families on Facebook Live
WHERE: Watch live on Facebook here: https://www.facebook.com/PPP2R5D/
WHEN: February 28, 2018 at 11 AM PST
Since 2015, over 50 families from around the world with children diagnosed with Jordan's Syndrome have connected on Facebook to share stories and support.
To watch the live video, visit https://www.facebook.com/PPP2R5D/.