Our community has asked a number of questions about the impacts of rare disease on the sibling experience. Now, we are happy to share this comprehensive document with you, the Rare Revolution Magazine Sibling Impact Report.

Inside, the group  takes a closer look at their findings from 52 siblings ages 8-25 from families affected by rare disease. It’s more than 30 pages, but it’s a wonderful resource for so many of our families and families across the rare disease space. Thank you, Rare Revolutions Magazine!
Read more below:


April 5, 2023