Teaming up with a pair of superheroes, dozens of families were on the move to raise money for our groundbreaking research into Jordan's Syndrome. The Superheroes on the Move event held last Saturday in the Phoneix area raised more than $4,000!

More than 90 people took part in the walk, which was led by Captain America and Wonder Woman. Three families with children diagnosed with Jordan's Syndrome – Avianna, Ava, and Yara – joined in the festivities.The family-oriented event featured a bounce house, as well as a raffle with donations from the W Scottsdale, Waxing the City Tempe, Kendra Scott Scottsdale, Laser Away Chandler, and a gym membership from Desert Fitness Mesa.

We were also thrilled to be joined by several vendors, including Pawsitive Friendships, a Phoenix-area organization that provides animal-assisted therapy to children with special needs. Thank you to everyone who came together to make this event so special!!


February 28, 2018