Global Genes, a leading rare disease patient advocacy organization announced its annual Rare Champions of Hope Awards September 13th in San Diego, California. The night’s top honor went to the Rare Founder Award recipients Cynthia and Joe Lang, Co-Founders of Jordan’s Guardian Angels.

The RARE Founder’s Award recognizes those who exhibit commitment to connecting, empowering and inspiring the rare disease community through lifetime contributions and achievements advocating for people living with rare disease.

“What can we do for our children?” asked Joe Lang to parents in the room during his acceptance speech. “You all truly are the champions of hope and maybe most importantly our children themselves. They are the hope, the hope that we have and the hope we carry with us in all of these efforts,” Lang said.

We are so proud of our Founders and the tireless work Cynthia and Joe put forward every day. Thank you is never enough, but we are grateful to Global Genes for recognizing the incredible hope they bring to our community and the world.

Read JGA’s press release here.

Read the Global Genes press release here.


September 14, 2022